I will try to write daily.  I suppose this is a sort of a diary.  Today I saw my regular physician for my swollen left underarm.  I noticed it about 2 weeks ago, and took antibiotics for 2 weeks but they didn't help.  My internist and my oncologist will have to work together on this.  It could be a lymph node cancer, which although not common with Myelofibrosis, could still occur.  Myelofibrosis is a bone marrow cancer where your  bone marrow turns to scar tissue.  There is only one cure, a bone marrow/stem cell transplant, and I am not a candidate for that.  I can't imagine hearing anything from my doctors until this holiday weekend has run its course.

 In the midst of this is everyday life and the problems everyday life brings you.  Today our dryer went kaput and this is the July 4th weekend so getting a new one installed won't happen this weekend.  I did wash some of my  summer pull on shifts as they will dry fine on the shower pole.  Or whatever you call it!  I thought, well, if I need that freshly dried effect I could ask Jay to swish  over them with a hair dryer!  Lol!  I guess this is enough for a beginner's  blog.  I will get some sleep and see what

 tomorrow brings .



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How do I start? I want to leave something for the people I love and for anyone that might gain strength from my struggles. I was given a devastating diagnosis of Myelofibrosis this past winter. I keep on going like things are normal but they aren't. Some days are nearly impossibly painful but some days I feel almost normal. Having a cup of coffee, chatting with my husband, who is one of the finest conversationalist in this world. But under the surface, even on good days, I have this fear of the knowledge that life is really short.

Saturday, July 5th