Pain

 Today I have had less pain than usual and that's a real blessing.  I hate pain!  I think everyone hates pain!  We all have to endure it at various levels, unfortunately, because that's part of being human.  Having lupus brought lots of joint pain for years, but I have been stable with that disease for a number of years. Unfortunately, CIDP, chronic inflammatory demyelating polyneuropathy, presented it's ugly head in 2003 and that causes a lot of pain, in my case, in my legs.  I am stable with that to disease in that I am not getting worse, and I am grateful for that.  But then a mild cancer reared it's ugly Head 2 or 3 years ago and this past winter the mild cancer transformed to an aggressive and painful cancer, Myelofibrosis.  I am not grateful for that.  I don't know if I am bitter or not, but I am residing in a mental state where that cancer isn't sometimes is terribly painful and sometimes I don't feel such terrible pain, like today, but I am very fatigued.  As in, going to the bathroom takes a lot of energy and sometimes I need help, but Jay helps me .  I am grateful for Jay . It is difficult to describe that feeling when your loved one holds you to prevent you from falling, but the words love and gratefulness are partly descriptive.  Right now I am feeling just worn out and need to sleep, and I will see what tomorrow brings.

Comments

  1. I was going to post a Sunday blog but I can't figure out how to start a new conversation. Oh well! I will figure it out later. Lol!

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How do I start? I want to leave something for the people I love and for anyone that might gain strength from my struggles. I was given a devastating diagnosis of Myelofibrosis this past winter. I keep on going like things are normal but they aren't. Some days are nearly impossibly painful but some days I feel almost normal. Having a cup of coffee, chatting with my husband, who is one of the finest conversationalist in this world. But under the surface, even on good days, I have this fear of the knowledge that life is really short.

Saturday, July 5th